miscellaneous

Children have strokes too.

Yes, children really do have strokes. There are different kinds of strokes, you can read about them here. E had a stroke on that Monday in April 2015, which caused the seizure. But we didn’t know that yet. I’ll start where my last post left off. Here’s the first part of the story.

We settled into our room at Akron Children’s. E was sleeping off the meds, and the extreme exhaustion that comes from having a seizure. J and I sat and tried to digest all that had happened. I felt numb, and in disbelief that this was happening to us. We called family members and told them what we knew (which wasn’t much). There’s so much waiting at hospitals, things take on a life of their own. It’s no one’s fault really, it’s just how things are. Doctors and nurses came and went, introducing themselves, and asking questions. It’s safe to say that we’ve never scrutinized any days as much as the days leading up to this one. We wracked our brains for memories of signs of anything that was outside the scope of normalcy. The facts were as follows: E had a cold and runny nose. The night before he and O were playing on the floor in the living room when E stumbled, followed by some crying. Soon after, he stumbled again and he cried again. It was enough to catch our attention, and caused a little concern because we talked about it after the kids were in bed. Well, the stumbles were odd but he had a cold and runny nose, so maybe an ear infection was making itself known. That would explain the equilibrium issue. Yes, we decided without more thoughts on the matter, it must be an ear infection.

Each doctor wrote notes furiously as we recalled our memories. They did blood work and a spinal tap to rule out the most pressing medical issues. They began administering a broad spectrum antibiotic as well. The neurologists were thinking febrile seizures. This sent me into a world of guilt. How could I miss a fever? I had checked his temperature the night before. “Don’t feel guilty,” they said.

By that evening, E was beginning to wake up but was still very groggy. You know, it’s funny because I can’t remember if we ate dinner that evening. I don’t remember some basic things, but others are crystal clear. J and I were ecstatic that E recognized us, and seemed happy. His smile drooped on the right side. It must be after-effects of the medication we decided. My parents and brother stopped in that evening. E adores my brother and cheered up considerably for him, even trying to move some. We noticed his right arm and leg didn’t seem to move as easily as the left. “My, he looks like an old person who had a stroke!” one of us said. “But surely not…” we added, shrugging.

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That night we held E all night. Before the seizure he usually sucked his two middle fingers on his right hand. He worked hard during his sleep to get his right hand up to his mouth. He tried over and over, and finally his fingers found their way into his mouth. I remember feeling so relieved that he had regained this ordinary comfort.

By the next morning, his cultures showed growth which told the doctors what kind of infection they were up against. They changed the dosage of the antibiotics a little. E. woke up happy. We read books and introduced soft solid foods to him. We noticed that food kept wanting to sneak into his right cheek, and he didn’t seem to feel food on his lip. When doctors or nurses tried to get him to stand up, he wasn’t able to stand without assistance. This concerned the neurologists and us. They ordered an MRI for the next morning.

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Wednesday morning we walked down to the MRI with E and some nurses. We waited while they did the MRI, not knowing really what to expect. We knew E wasn’t progressing like he should, but nothing could have prepared us for what the doctors discovered. I can’t quite remember going back to E’s room, I think it was there that the neurologists told us that E had a stroke. They knew right away from the damage caused by the stroke that it had originated in his heart. They did so well helping us understand what had happened. I remember feeling numb. Over the course of this week, J and I would often feel numb not knowing what to say. We’d sit in silence and digest what the doctors said and after a little while we could talk again.

Once E was diagnosed with a stroke, the therapists started coming. More questions and analyzing where E functioned before the stroke, so as to establish goals. In the beginning, E didn’t want anything to do with the therapists. They gave him time and got to know his likes and dislikes, and made therapy fun. It wasn’t long before he got so excited to see the therapists with  totes full of toys and activities.

Either Thursday or Friday morning during rounds, E bore weight on his right leg and took his first wobbly steps towards the doctor. There were tears of joy and clapping all around. As E continued to heal and make progress we rejoiced at each new accomplishment. As the days wore on, his motor skills returned and improved rather quickly. Young brains are incredible in their ability to heal and make new connections. E had a very limited vocabulary before his stroke. His stroke happened to damage part of the speech center of his brain. Because of this he lost everything except for, “Ummhmm (yes), and Hmmumm (no).” We began teaching ourselves sign language, and doing all sorts of things to help with communication.

His speech continues to be his biggest hurdle. By October of 2015 we were trying to get him to make open mouthed sounds. Anything would do. Since it was near Halloween his speech therapist focused on “Boo”. He has worked incredibly hard with speech therapists year round and can now speak in sentences. We can’t always understand what he’s trying to say, but we remind him to be patient with our ears. Each letter sound, each combination needs to be repeated over and over. I never knew what I’ve always taken for granted about learning to speak. Little babies naturally touch our lips and our faces when we speak to them. They’re discovering vibrations and feel the air while we form words. They learn by observing and by repetition. The thing I have been most thankful for in the times we’ve needed support is that there are people, angels really, who want to be therapists, teachers, and aides. They make it their job to help and support those in need.

The hardest part of all is accepting that things will happen in their own time. There wasn’t much for us to do during E’s first hospital stay, except wait and see. It takes so much surrender when the future looks unclear, when things are beyond our ability to control. The unknown future is awfully scary, but we have an all-knowing and loving God to give us strength. During E’s sickness, dear friends would share Bible verses, we would play music quietly, and reading Psalms was especially comforting. Psalm 121 became my lifeline. I read it every day for months. And our comforting songs were Ellie Holcomb’s My Portion and My Strength  and For King & Country’s Shoulders.  J and I have experienced many emotional triggers in these areas. Songs, and Bible verses that we clung to for comfort and hope during our hardest days. It comes when I least expect it, in the store, driving, talking to a friend, or in church I hear a verse or part of a song and the emotions spill down my face.

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It’s taken me a few weeks to write this post. It’s not easy reliving this part of our life. I’d call it painful, but good. Painful because I’d rather forget that anything happened, forget that this changed our lives. And good because it shows how far we’ve come, how far E has come and how good continual surrender is. My next post will probably focus on E’s heart, what we discovered about it after the stroke and maybe even his open heart surgery. It may take another half year until it feels therapeutic to write again. Feel free to comment or email questions you may have.

Less of me.

I remember posting about organization and gardening. It feels like a whole lifetime ago. Before I get all angsty here, I’ll share a few changes from this past year:

Last March/April we started training for foster care through a wonderful Christian agency. We had foster care and adoption on our hearts since we were first married. Basically youths. Little babies, dreaming a big dream.

The Monday after our training ended, (our last class was CPR/First Aid on a Saturday) we were thrown into a new world. When I checked on E. he has having a seizure in his bed. It’s hard to think about what happened during the moments that followed. It’s been nearly a year, and with time the realness fades a bit. In a heartbeat… the sound of sirens, hearing songs or bible verses we clung to during that time… the memories come flooding back, nearly choking me. I know it’s partially PTSD from the trauma, but it’s also a way of healing. It’s real, and it’s hard. It’s therapeutic to share E.’s story these days. I’m following my heart in how much to share, and when to share. I hope to write more posts about all that happened to E.

In August, we resumed our foster care/adoption home study process. and fast forward 3 months we were certified for both and had our first placement. It’s been a wonderful experience so far. I hope to share more about this ever-changing journey of foster care. We’ve been learning so much about many aspects of foster care and adoption. There are many hard decisions to make, and often only minutes to an hour to make these life altering decisions. It’s a calling for me. I know I wouldn’t be able to do any of this on my own strength. God gives us the strength we need, through the Word, Prayer, Songs, and other people.

Both O. and E. started school last fall. O. is in Kindergarten, and loving it. She’s studious and hilarious at the same time. She has a refreshing perspective. E. started preschool in October. He’s receiving speech therapy there, as well as learning how to interact with other children. He loves his two days a week there. It’s hard for me to let go, to let them mature and become independent at their own pace. Sometimes it’s a bit delayed, and other times Mama bear holds on too tightly. This parenting thing is not for the faint of heart. I’m so thankful God pours his love and mercy into our lives, filling in gaps and leading us.

I’m hoping to share more this year as I have time, or let’s be honest…sleepless nights. 🙂

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What I’m reading: finally, but it’s taking me a looong time

What I’m listening to: Hillsong

What I’m watching: Part 2 of this heartbreak

Happy weekend, friends.

Life Lately.

IMG_6110This is a different Life Lately post. I’ve been thinking about posting for a while, and keep grasping for words and ways to start. Lately I’ve been learning the meaning of trust and surrender, and knowing where the source of my strength is.

          Psalm 121
 I lift up my eyes to the hills.
 From where does my help come?
 My help comes from the Lord,
 who made heaven and earth.

 He will not let your foot be moved;
 he who keeps you will not slumber.
 Behold, he who keeps Israel
 will neither slumber nor sleep.

 The Lord is your keeper;
 the Lord is your shade on your right hand.
 The sun shall not strike you by day,
 nor the moon by night.

 The Lord will keep you from all evil;
 he will keep your life.
 The Lord will keep
 your going out and your coming in
 from this time forth and forevermore.

I find it hard to even think about everything that happened, much less post about it. I shared some on Instagram and Facebook. I guess it’s hard to share the feelings/emotions we’ve gone through without feeling vulnerable. I keep thinking, maybe with time I’ll be able to share more. My posts might be a little disjointed; be assured, though, I still love organizing (it really is a wonderful coping mechanism).

Hold your family close today.

Less is More (Children’s Clothing Edition)

It all started with trying to fit all our Christmas decor (minus the tree) into one tote. I realized how much excess we really had, and probably still have. I browsed the internet for wisdom in simplifying, minimalism, and organization. I found many good ideas, some I implemented and others that inspired me to keep going.

I want to focus on children’s clothing today, and how I am taming this monstrous beast. Please tell me I’m not the only one to go through this. 🙂 We have two children, a girlie and a boy so with them came an outrageous amount of cute clothing. Seriously cute. The gifts accumulated quickly and that, paired with my love for thrifting caused this thing I call a beast. Easy to add to and hard to minimize. Oh, each year I’d go through the totes, pairing things down. Being sentimental is not easy, each piece of clothing brought back memories (am I the only one?). I tried to get rid of them, I really did. This year was different. This year I wanted a system that worked. Something I could rely on. Here’s what happened:

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J. helped me figure out approximately how many items each child could live with. So the original list was made.

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Please don’t judge. 🙂 I went through 6-7 totes of children’s clothing, and kept less than half. What we kept, I put into cardboard boxes that would fit into our closets upstairs. No more totes in the basement! Also, can you imagine the fun our children had going through these with us? Our children loved this project. It made me a bit batty. We clearly labelled the boxes, so we can grab a box if we ever need to.

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As you can see, the boxes aren’t all that full and they include coats and boots. Obviously the bigger sizes fill up quicker, but then I need to get rid of more. I didn’t necessarily stick with the list for these boxes. I tried to keep less than listed in order to leave room for new clothing (if we are blessed with more children).

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Here are two closets in their organized glory. You can see that we have plenty of room for games, sleeping bags, pack-n-play, swimming gear, extra Pampers and wipes and a few odds and ends. Once the extra clothing was sorted and organized, I started thinking about the clothing our children currently wear. Would I dare get rid of some? That seemed a bit crazy, but throwing caution into the wind we started sorting. This time I stuck with our list (see first photo) to see if this was actually doable.

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So far, it has worked well. It’s been a few months since we started.

With everything organized, I needed a system in place to keep everything organized. Have you ever been at a thrift store or clearance somewhere, saw a pair of pants or a cute dress in a bigger size? The next thought is, “hmmm? I can’t remember how many pants I have for E, or how many dresses for O. . . I may as well buy it. It’s cheap!” This is how I ended up with excess. Cute and cheap! Somehow I needed to stop this cycle. Well, I tried to take my planner with me everywhere I went. That just didn’t work. So I thought of my phone, which is usually in my purse or pocket. I found an app and decided to try it. It’s called Sortly, and it works for me. I know there are other organizational apps, feel free to choose your own. Here’s how I organized my app:

IMG_4170In the shoes category, I have a list of our family’s current shoe sizes. The clothing category is organized like this:

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As you can see, the main item includes the quantity needed. Then I can always see what we need. It sure makes decisions easier at thrift stores or any stores for that matter. 🙂 Organized clothing makes me happy. Each child has one drawer dedicated to the larger size.

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It seems so easy…now. Some of you veteran Moms will probably smile, maybe even laugh at this post. That’s okay! If you’re just beginning to think that you have too many children’s clothing, be encouraged.

Enjoy this brand new week, friends!

Simplicity is Freedom.

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It’s the most wonderful time of year. Some years I feel like doing it all. Decking the halls, baking all kinds of goodies, buying/making gifts (galore), sending out Christmas cards, and anything you could possibly think of. And it’s fun! Other years, it feels a little forced and overwhelming. What if all the doing is robbing you of joy? Maybe not even robbing you of joy, but making you feel overwhelmed and more than a little grumpy. I’m sure a few of you have grown children and you have plenty of time (am I right?) to bustle about in busyness. Are you finding joy in doing it all? Some of you may be single, not a care in the world (right again?!) and also have so much time to do everything. Are you finding joy in doing it all? I’m guessing there are a few mama’s with little children. Ah, someone who relates! When the days are long, but at the same time have a way of flying by. At the end of the day you sink exhausted into bed and wonder what you accomplished that day.

This year I’m taking a little break from all the doing. Our decorations are staying simple (pictures coming later this week), our presents are quite puny, but our joy is still here! There is also much freedom in saying, “Hey, I don’t need to do it all!” When I hear “Mom, can you read this book?” I will more than likely say yes. I should probably sweep under the table after lunch, but I don’t (unless it’s absolutely horrid). I’m guessing you understand. I play more with L. lately. I get the house with the blue garage door and she gets the schoolhouse with a manger scene. She gets lemon meringue and strawberry shortcake and I get a mouse and two little puppies. It’s okay, my puppies each have a separate bed.

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This is often my daily view when I look down. I’m not complaining, I love my little side-kick. We’ve had many adventures, whether it’s on top of the washer while I iron or beside the stove while I cook. Sometimes Mom is very loved.

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So with all the extra time on my hands…..oh wait! Somehow these days fill right up. Time seems to have a mind of its own. But every day I try to say yes to reading another book and squeezing in more snuggles during the day. I’m doing the best I can, and so are you. If you find yourself doing it all, WAY TO GO! Keep going! If you’re like me, and would like a little break…TAKE IT!

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“Often people attempt to live their lives backwards; they try to have more things, or more money, in order to do more of what they want, so they will be happier. The way it actually works is the reverse. You must first be who you really are, then do what you need to do, in order to have what you want.” – Margaret Young

Simplicity is freedom.

Life lately.

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What I’m reading: Grace for the Good Girl by Emily P. Freeman

What I’m listening to: Lord, I Need You by Matt Maher

What I’m watching: Mr. Kid President because he’s the best.

What I’m thinking (well, a tiny portion): Today is the atticroseblog’s first anniversary (or blogiversary). It’s hard for me to comprehend really. I knew it was sometime this week, but didn’t realize until I started typing this post. :: How can we keep Christmas simple this year? (read: not all about us) Are we really enjoying everything we’re doing? Am I taking time to slow down and read to my children, or would I rather bake cookies to give away to friends? Which is more important? (should I blog about my thoughts on this?) 🙂 :: We spent some time at thereliefbus.org in November. Some seriously life-changing stuff.

Blog recommendation: A Holy Experience

Happy weekending, friends!